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Grant Writer Request #06262020B

Project Start Date: Immediately

Grant Writer Needed To Provide Education and Advocacy For Patients With HPP and Their Families and Caregivers

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Hourly Rates:
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for Research
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for Grant Writing

Grant Writer Request #06262020B

Primary Purpose:
We are looking for a longer-term partner to work with us to diversify our fundings.
Programming and Dollar Needs:
We are a rare patient advocacy organization that supports patient education and awareness and research. We have several programs in place to fulfill our mission that has many opportunities for grants.
Project Description:
Provide your hourly rate for research and locating grants for: 10 hours per week for 52 weeks.   For a total of 520 hours.
The Grant Writer should be ready to begin work on: Immediately
Organizational Status:
Our organization is a(n): Non Profit, 501c3, Rare Disease
Our company is in existence for: 11 Year(s)
Services:
We presently provide or will be providing services in the geographic areas of: Mainly based in the US, but we also provide global support.
Patient support, education programs, physician outreach, teen advisory council, patient engagement, research, gene therapy
Current Revenue:
Traditional fundraising and industry sponsorships
Grant History:
We have previously applied for a grant(s).
We have applied for some grants working with a contractor - we are waiting to hear what the decision is.
We have previously received $100,000 in grant funds.
We have a copy of our previously written grant application(s).  We have been working with a consultant who was excellent but she obtained a full-time job. We see this being a consistent consulting job with the potential to grow.
$100k would be in the past year -- in overall history it is much larger.
We have a fundraising packet.  We need to have our case for support, fundraising packet updated.
We have an agency mission statement: Our mission is to provide valuable information, education, and support for people living with hypophosphatasia (HPP), their families, and caregivers. The foundation promotes research of this rare bone disease through awareness and fund-raising efforts.