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Grant Writer Request #03032021E

  
Primary Purpose:
We need a partner to help with grant requests who can get to know our organization and work with us closely on development to identify opportunities as well as to oversee, write and submit the grant process.
Programming and Dollar Needs:
We are a rare disease patient advocacy organization. We do a lot of disease education, patient programs, policy initiatives, and more. We have so many opportunities for grants but need someone to help us seize the moment.
Project Description:
Provide your hourly rate for research and locating grants for: 20 hours per month for 12 months.   For a total of 240 hours.
This may be more or less depending on the opportunities identified.
The Grant Writer should be ready to begin work on: Immediately
Provide a flat rate for writing and developing each of the following application(s):

AXA Grant    (View details of this grant here.)

Due: March 15, 2021

Organizational Status:
Our organization is a(n): Non Profit, 501c3, Rare disease
Our company is in existence for: 13 Year(s)
Services:
We presently provide or will be providing services in the geographic areas of: US and Global
Patient support and access, Youth and Teen Programs, Patient education, Physician Education
Current Revenue:
Fundraising and grants
Grant History:
We have previously applied for a grant(s).
We have previously received $250,000 in grant funds.
We have a copy of our previously written grant application(s).  
We do not have a fundraising packet.
We have an agency mission statement: The mission of our organization is to provide valuable information, education and support for people living with hypophosphatasia (HPP), their families and caregivers. The Foundation promotes research of this rare bone disease through awareness and fundraising efforts.